Sam Berns, a spunky teenager who was proud to call himself a "band geek" and was at the heart of a 2013 documentary about a genetic condition that accelerates aging, has died. He was 17.
<div> Berns, a Massachusetts high school junior and Eagle Scout who was bald, bespectacled and weighed only 50 pounds, died Friday from complications of progeria, the Progeria Research Foundation announced.
An avid fan of Boston sports teams, Berns also was passionate about playing the snare drum and marching in full uniform with Foxborough High School's marching band.
"The music that we make together is true, it's genuine, and it supersedes progeria," he told an audience at a TED Talkabout his condition last October. "I don't have to worry about that when I'm feeling so good about making music."
The HBO documentary
<div> Berns, a Massachusetts high school junior and Eagle Scout who was bald, bespectacled and weighed only 50 pounds, died Friday from complications of progeria, the Progeria Research Foundation announced.
An avid fan of Boston sports teams, Berns also was passionate about playing the snare drum and marching in full uniform with Foxborough High School's marching band.
"The music that we make together is true, it's genuine, and it supersedes progeria," he told an audience at a TED Talkabout his condition last October. "I don't have to worry about that when I'm feeling so good about making music."
The HBO documentary
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